Jul 23, 2009

Summer So Far

Alexis has had a pretty fun summer so far with trips to the zoo, library and family vacations. Here are a few photos.
In Intercourse, PA
In Philadelphia, PA talking to Thomas Jefferson asking him to make the clock chime again.At a Primary Activity - my cookie monsters

The last one is of Alexis entertaining herself while in time out.

Jul 22, 2009

Inspiration

I have been feeling for awhile that I should create some kind of outlet for me as a mother to express my joys and frustrations in raising a child with a chromosome deletion. I have also felt a desire to connect with other parents who may be going through the same trials I have been going through. What I have come to realize is that I may be able to help other parents because in my search I have found that Alexis is one of the older children with the 1p36 deletion. I pray that my family's experiences can be a comfort for others.