I have been feeling for awhile that I should create some kind of outlet for me as a mother to express my joys and frustrations in raising a child with a chromosome deletion. I have also felt a desire to connect with other parents who may be going through the same trials I have been going through. What I have come to realize is that I may be able to help other parents because in my search I have found that Alexis is one of the older children with the 1p36 deletion. I pray that my family's experiences can be a comfort for others.
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